Upon submission of the form, our team will connect with you to provide further details and gather additional information.
You also may request a kit from the Peter and Takako Jones Lab directly at peterjones@med.unr.edu
Your personal information and request for a test kit are confidential. Your information is only provided to the FSHD research testing study coordinator who will arrange with the testing site to have a kit sent to you.
No FSHD testing is performed by MyFSHD. MyFSHD merely connects you with the Peter and Takako Jones Lab which does the testing.
You will not receive your research testing results through MyFSHD.
MyFSHD does not share any of your information other than with the testing site.
MyFSHD does not log or keep a record of your results.